May 30, 2012

Well, life is full of ironies.  After writing about our hospital experience just over two weeks ago, Rachel fell quite ill and has ended up in hospital again.  What seemed to be a simple virus was diagnosed as scarlet fever.  Yet after 5 days on antibiotics, rather than get better, her health only got worse.  She could barely [...]

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Mother’s Day

May 13, 2012

Four years ago on Mother’s Day I was gearing up for a very special day–the day my daughter would be released from the hospital.  Already it had been four weeks since she had been born; four weeks of running back and forth from the hospital, first from the NICU when her oxygen levels had been dangerously low [...]

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May 4, 2012

Her nickname, given to her by her brother, is “Huggy”.  It’s quite simple–she loves to give hugs.  It’s been pretty sweet, and she’s always received lots of praise for it, but now that she’s four, it’s not quite so cute.  She will hug anyone, stranger or not.  She runs to hug the hostess as we leave [...]

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April 21, 2012

We had a birthday this past week. One nice thing about this blog is that I can go back to a year ago and see where we were then.  A lot has changed in a year, especially in terms of Rachel’s new ability to walk, and I realize how important that milestone was for us.  Last year, [...]

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A Mother Like Alex

March 25, 2012

TVOntario recently broadcast a wonderful documentary about  Alex Bell, a mother living just outside Manchester, England.  Over a period of 25 years, Alex has adopted and fostered eight children with special needs, seven of whom have Down Syndrome.  The program profiles Alex and her children–who range in age from 10 to young adulthood–as well as several of their birth families.  [...]

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March 5, 2012

So I went away for a week.  By myself.  For the first time since my kids have been born.  OK, I had been away for a night or two – a couple of times.  But in 8 years, I hadn’t had this span of time without anyone in my family nearby.  Like many other parents,  [...]

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Walking Party 101

February 10, 2012

When I left off for a while in the fall while working on this new site, I mentioned that we planned to have a party for Rachel in honour of her recently acquired skill of walking. As I wrote earlier, I had told a lot of people that when she finally learned to walk, I would throw a party, and [...]

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You will Dream New Dreams

February 7, 2012

  This lovely collection of essays by parents of children with special needs is similar to Gifts, but is not exclusively about children with Down syndrome.  The book contains many chapters about DS, but as a parent I actually found it interesting to read about children with other conditions.  These days we often meet  people who are [...]

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Enjoying the Small Things

February 1, 2012

About two years ago, someone sent me a link to this birth story.  (Warning: if you click, have tissues handy!)  I couldn’t get over the vivid honesty in the way the author, Kelle Hampton, described the birth of her daughter. As one friend I forwarded it to said, “It is so beautiful. And so difficult.”  So much [...]

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Passport to Anywhere

January 25, 2012
Cross fingers that it passes inspection!

So we’re heading on a big trip this summer, and the time has come to get new passports.  Easy, right?  Well, it’s amazing how Down syndrome can even sneak its way into something as simple as getting a passport photo taken. In we went to the photo store today, me with a touch of lipstick [...]

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